LILY Parremore has only the 12th known Australian case of the rare Pallister-Killian Syndrome.
Because of her chromosomal disorder, 22-month-old Lily is only able to sit and play for short periods. She is unable to walk, crawl or roll over without help.
Lily's family is trying to raise funds for a Kid Gait Walker to help teach her to walk.
Parents Amy Males and Tim Parremore have been told Lily has the brain capacity of an eight or nine-month-old child. She was not diagnosed with PKS until she was about three weeks old.
"One of the hardest things is not knowing what to expect. Some children with the same thing learn to walk, some don't. You can't predict it," Ms Males said.
"The Royal Hobart Hospital have been great but in her short life Lily has had four different paediatricians which makes it difficult especially as what she has is so rare.
"There have been countless paediatrician visits. She has regular EEG [brain activity scans] because of seizures."
The young family is being helped by family friends who have set up a Facebook page Luv 4 Lily and are running a charity auction to raise funds for Lily's walker.
"We are grateful for the generosity of many local businesses and people. We also sold some fund raising chocolates to purchase a 'second skin' to help her development," Ms Males said.
To donate an item or voucher to be auctioned for Lily call 6230 0443.
The online auction will be on Sunday and details can be found at The Luv 4 Lily Facebook page.
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